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January 28, 2014     The Ortonville Independent
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Botker (continued from page one) of town, so of course she and my dad took Greta with. At that party, a woman came up to my mother and started ask- ing about Greta. This woman had a grown son with epilepsy. A son who had done very well by using medical marijuana for his epilepsy. Interesting, my mom thought, and she called us with that story when she got home from the party that day. So the researching started, and we even asked our beloved Epileptologist about this option for Greta. Of course it is illegal in 'MN, so he said that he wasn't able to help us with that and did- n't really know anyone in Colorado to contact. More researching was done. And then on August 11 of 2013, CNN aired the special WEED, where Dr. Sanjay Gupta, reported of the benefits of a special form of medical marijuana, Charlotte's Web (CW) that was helping kids with epilepsy. Charlotte's Web is a genetically modified form of marijuana that is grown near Colorado Springs by a group of 6 brothers who are referred to as the Stanley Brothers. CW is high in cannabidiol (CBD) and low in tetrahydrocannabinol ( THC). Mark and I decided that we needed to give this a try for Greta sooner than later. We got in touch with REALM of caring, an organization that helps fam- ilies get access to Charlottes web and a few weeks later, Mark and I flew out to Colorado to start looking for a place to live. The process to get access to CW is complicated. First you need to estab- lish residency, then get a driver's license for the parent with residency. Next we needed to get a Colorado ID for Greta, then make appointments with two physicians in Colorado who would rec- ommend medical marijuana for Greta. After the two appointments, the red card application paperwork needs to be completed and notarized, then sent in by certified mall. This paperwork is so nerve-racking because they will reject it for the simplest reasons, such as writ- ing the date as MM/DD/YY instead of MM/DD.YYYY. I remember being so nervous f'flling it out that I had to stop and think about when my own birthday was when I had to fill that in on one of the several papers. If your paperwork is rejected, it delays your child's access to medical marijuana. We didn't want to get bumped down the long waiting list for getting CW for Greta because the word was out across America that Colorado was the only place with this special strain best for children. The application was sent, we closed on our Colorado home, and then made the long drive out to Colorado the be- ginning of October with Emma and Lora to move things in to our home. We had so much fun thatweekend, get- ting the house ready for G and I: We flew back home leaving our truck out Springs to pick up her CW. Finally this day had come! We gave Greta her first dose of CW that evening, and I remem- ber waking up to check on her at least 6 times that night. Since then Greta and I have been living in Colorado, while Mark, Emma and Lora stay in Clinton. We re- ally did not want to take the older girls away from all that they love about home, and we knew that Mark needed to stay back for work and of course, coaching Lora's BB team. This is not ideal to be living apart, in fact it is re- ally tough. But we all discussed this many, many times, and we feel like this' is the best for all of the girls right now. We are so thankful for facetime, face- book, texting and phone calls that keep us connected everyday. I remember the first basketball game I got to see on Facetime, I sat there watching Lora's game in real time, crying, because I was so unbelievably happy to be able to see Lora and her buds play. Since then I have been able to catch some concerts and more of Lora and Emma's games- I love it! Greta and I have been blessed to have found a bunch of new friends out here. All of them, actually, are in the same situation we are, having hadto move from their homes out here for ac- cess to CW. We live just four blocks away from our dearest friends, who moved here from New York. Their 2- year old little girl has Dravet syn- drome, which is another tough epilepsy similar to LGS. There are currently 187 children and 97 adults on CW. The CW families get together at least once a month and there is a lot of great sup- port from other parents who have the same fears, questions, hopes and dreams that we do. We basically learn from each other and help each other through this process as we are some of the first to figure oht the good, the bad and the challenges of taking CW. There is really no doctor giving us advice or helping us with dosing, we learn from each other. So different from what we are used to doing with G. Greta's seizures have decreased by at least 50 percent since starting CW, and she has also been able to slowly wean off of 3 out of 5 of her epilepsy medications she was taking prior to CW. Greta is attending school out here and is enjoying that. But this is not home for us. We want to be back in MN with the family, friends and com- munity we love and miss so much. Our mission is to get this safe form of med- ical marijuana legal in MN, so we can come back soon. There is a lot of sup- port in the house and senate, but Gov- ernor Dayton has been against legalizing mainly due to law enforce- ment groups who will not support this. But we plan to do everything we possi- bly can to educate the public and the Governor about how medical marijuana can be used to treat epilepsy, cancer, MS, Parkinson's, PTSD, and even de- pression and arLxiety. There are over 20 states who have recognized the benefits in CO,, 0 that w, hen wg.o3.,gKcgO.. ,.,q medical marijuana and made it legal : liglaftli  Gi'eta S  CW was, rhtly, we in their states. could just fly out antt..have,.thev; ........ Lralize. that many of us associate thing somewhat ready to go. The first marijuana as being something bad, partof November, the REALM of car- ing sent us the much anticipated email that we were officially .off the waiting list and ready to order our first month's supply of CW. Mark, Greta and I flew out to Colorado on November 12th, went to Denver to pick up Greta's red card, and then drove to Colorado something illegal. But over the past two months, I have daily reasons to be- lieve that this might be G's miracle! And so do several other parents out here for the same reason. If this was your child, what would you do? - Mafia and Mark Botker A SMILING GRETA - at their home in Colorado - Thanking people 'back home' after she had her first dose of 'Charlotte's Web' - medical marijuana. They would love to come home - if medical marjiuana would be available in Minnesota. Propane (continued from page one) tains to let sunlight in during the day and closing them at night can help too. Unplugging appliances, chargers and cords when not in use will also lower your electric bills. Every time you see a light glowing on these items, they are using electricity. Insulating propane water heaters and turning the temperature down on them will save on propane usage. The U.S. Department of Energy estimates that turning a hot water heater from 120 de- grees to 115 degrees can reduce hot water related propane consumption by at least 10 percent. What caused propane prices to reach an all time high? According to the Na- tional Propane Gas Association, it was a combination of factors. Abundant grain crops were being harvested throughout the upper Midwest almost simultaneously this fall. Ordinarily, the harvest progresses in stages through the region but in late 2013, the harvests happened at the same time over a wide area. This was a large, wet crop which required massive amounts of propane in order to be dried prior to storage. That demand reduced propane invento- ries throughout the area. At the same time, according to the NPGA, the Cochin pipeline, which pro- vided 40 percent of the product used by Minnesota suppliers, was shut down for repairs. This triggered a chain reaction causing suppliers to go further out to load their supply. Canadian imports to the Northeast were also impaired by rail re-routing. This forced Minnesota and Wisconsin retailers to get their propane at the pipelines in Iowa, increasing de- mand in that state. As the harvest demand ended, a massive winter storm rolled across much of the country. Demand for resi- dential, commercial and agricultural heat soared. The average number of heating degree days for this winter is more than 10 percent higher than last year. The forecast continues to project colder than normal weather for much of the United States. An important difference between this year and previous years, according to the NPGA is the extent of propane exports into the world market. In 2013, more than 20 percent of total U.S. propane was exported, up from five percent in 2008. Tuesday, Jan. 21,2014 New arrival Ortonville News Proud to announce the arrival of Morgan Anne Bilben born Jan. 10, 2014 at 7:45 a.m.. She weighed six pounds, three ounces. Parents are Shane and Megan Bilben of Milbank, SD. Grandparents are John and Sharon Bilben of Graceville, Lance and Donna Moen of Aberdeen, SD. Great grandparents are John and Marian MaGee of Hutchinson,Ardell Roberts Dick of Graceville and Annette Moen of Appleton. She joins big sister Madi- son. Hands Across the Lake mtg set The Hands Across the Lake Quilt Guild will meet on Monday, Feb. 3rd at 6:30 PM at the Tabor United Methodist Church in Big Stone City, SD. There will be a binding demonstra- tion. If you'd like it to be a hands on activity please bring two 9" squares of fabric, a 9" square of batting or in- sulbrite, a 2 1/2" strip of fabric for binding, (length of fabric), sewing ma- chine, small ruler and basic sewing supplies. Guests are always welcome. There will be "Show and Tell" and a light lunch. Area Aging Board seeks area rep. The Minnesota River Area Agency on Aging, Inc. (MnRAAA) is seek- ing interested persons to fill a one-year term, at-large vacancy on its Board ef- fective immediately. Applicants must reside and/or be employed in Big Stone, Chippewa, Lac qui Parle, Swift or Yellow Medicine Counties. The Board provides governance to the MnRAAA. Applications are due by Friday, Jan. 31, 2014. To request an applica- tion, or for more information, contact Erica at 507.389.8879 or erica@rndc.org. By Gaii Maxwell 8392207 Jeanne Berg went to church Sunday, Jan. 19 with Kristin Roe. Jeanne Berg had lunch at Pizza Ranch with the Roe family after church service. Helen (Danielson) Breden went to church with Gloria Danielson at Abid- ing Faith Lutheran Church on Sunday, Jan. 19. She ate at the church and stayed for an all day business meeting. Glen and Pat Danielson took Helen home afterwards. Visitors at the home of Gen Adel- man of Fairway View the week of Jan. 13 were Gen's grandson Tyler Adelman of Milbank, SD, Gen's sons Dennis of Milbank, SD and Don of Ortonville, and Marion Maatz of Fairway View. Gen's daughter Shirley Larson of Rose- mount came to visit Gen from Satur- day, Jan. 18 to Tuesday, Jan. 21. Eleanora Quast and her daughter Kathy Korth of Big Stone City, SD went to West Fargo, ND to help cele- brate Eleanora's nephew Dean and Doris Kasowski's 40th wedding an- niversary and also celebrated their 60th birthdays. They got to see many rela- tives while there on Saturday, Jan. 18. Sunday, Jan. 19, Eleanor Pavin vis- ited with Trudy Eastman and Nancy Reedy at Trudy's place in Graceville where they all had dinner together. Sunday afternoon, Jan. 19 Eleanor Pavin visited at Lois Lindner's in Graceville. Jerry and Ann Hanratty's son Chad and Marnie and daughter Anna were out over the Jan. 17 weekend fishing and visiting with Jerry and Ann. Marnie caught two fish. Brian and Brent Hanratty were also out to visit their parents Jerry and Ann for the Jan. 17 weekend. Friday, Jan. 24, Dustin and Joanie Hills' grandson Layne Arndt celebrated his 7th birthday. Layne had some friends over from school at Dustin and Joanie's to celebrate his birthday. Dorothy Gmiterko attended the pan- cake and ham breakfast served by the Knights of Columbus on Sunday, Jan. 19 at St. John's Catholic Church. Brent and Brenda Zahrbock visited Archie and Ashley Weatherspoon and little Archie and Ashton and Bryant Zahrbock of St. Paul for the weekend. Vidella Parks and Tiffany and Lany McKinney enjoyed coffee at Crafts, Gifts, and More on Saturday, Jan. 11 because it was such a nice day. Leslie Unruh from the Alpha Center in Sioux Falls, SD spoke at New Life Community Baptist Church on Sanctity of Life Sunday, Jan. 19. David and Janet Weber were supper guests at D.J. and Kristin Haggerty's for Brooke Haggerty's 4th birthday party on Saturday, Jan. 18. Jane Streed attended the breakfast at St. John's Catholic Church after Mass on Sunday, Jan. 19. Many Big Stone City and Rosen residents were also there. The breakfast was put on by KC's and was very enjoyable. Matt and Charlene Karels attended the wake on Monday night, Jan. 20 for Rose Christensen. Matt and Charlene Karels attended Rose Christensen's funeral on Tuesday, Jan. 21 at St. John's Catholic Church. Bruce and Sheila Hoernemann and Jacob are going to see Rachel and the Lady Trqjans in a basketball tourna- ment at the University of Minnesota, Morris. They are playing Brandon- Evansville on Saturday afternoon, Jan. 25. The weekend of Jan. 17, John and Anna Rothi had company Harold and Wesley Rothi and Mike of Elk River, Curt and Jessica Rothi of Anoka, Dave and Vicky Sager of Dassel, and Patty Anderson and daughters Kayla and Brooke of Lakeville. Kathy Gilsdorf was at her family Christmas get-together over the week- end of Jan. 17 in the Twin Cities. Bev and Don Prior attended a Prior family reunion in the Twin Cities over the weekend of Jan. 11 and 12. Bev and Don Prior were the recipi- ents of a recognition / retirement dinner at their church First United Methodist Church on Sunday, Jan. 19 with a potluck dinner after the service. They were honored because of 37 years as choir director for Don and choir ac- companist for Bev. They received a beautiful granite plaque in honor of their retirement. Don and Bev's daugh- ter Deanna and Pete Lundberg and their son Andrew also attended. Area news digest MILBANK, SD-Doug Tschetter and Deb Lindholm, both teachers in the Mil- bank School system since 1978, will retire at the end of the 2013-2014 school term. They submitted their resignations to the Milbank School District Board Education at its regular meeting Wednesday, Jan. 15, at the high school. Tschet- ter is an English and language arts instructor and also served as a forensics coach. He signed a three-year tenure incentive contract prior to the 2011-2012 school year. That program is no longer available to Milbank staff members. Lindholm has been a teacher at Koch Elementary since graduating from Moor- head State University in North Dakota. She is currently a third grade teacher and has also taught fourth grade and computers at Koch. MADISON-Longtime banker Dan Beiningen has announced he will soon be retiring from his role of Market President of the Madison office of United Prairie Bank. After years of serving the Madison area as a lender and leader in civic and banking operations alike, Dan will retire on March 28, 2014. "It's been a great career. I'll miss the daily contact with customers and co-workers, but will no doubt not be a stranger to the bank," comments Beiningen. APPLETON-The Big Stone Soil and "ater Conservation District have chosen Justin and Rachel Bakeberg as the 2013 Big Stone County Conservation Farmer's Award. Justin and Rachel live in rural Correll with their two daugh- ters, Carolynn, age three and Hannah, age one. Rachel owns and operates the Appleton Veterinary Clinic. MORRIS-An engineering firm is recommending that the city of Morris build a $9.4 million water treatment plant to improve aging infrastructure and help the city of Morris meet nationally mandated levels for water quality. Kris Swanson, an engineer with Bolton and Menk, presented the findings of a year- long look at the city's water and wastewater systems to the Morris City Council on Tuesday. The city hired Bolton and Menk to look at the city's Water and wastewater systems in light of two important issues: the systems are aging and new requirements from the Minnesota Pollution Control Agency will make them obsolete for the city's needs by 2020. It's been nearly 15 years since any significant improvements were made to the city's water systems. Morris' waste- water ponds were built in the 1960s and updated in 1993, while the water treat- ment plant was built in 1979 and updated in 1999. A bigger issue, however, is the. city's permit for waste water discharge. Under new regulations, the city will be required to lower the chloride (salt) content of the city's water from about 700 milligrams per liter to 406 milligrams per liter by 2020. The city is required to hav e a plan in place for.reducing salt by 2016, explained Swanson. All these factors combined to pre- vent regional inventories from recov- ering and the existing pipeline and terminal infrastructure has been un- able to recover. This has required longer driving distances and loading times, a scarcity of available product and delays in making deliveries to customers. NPGA is working with stakehold- ers throughout the propane industry to expedite propane delivery and seek relief from the current situation. The U.S. Department of Trans- portation has issued a regional order for the Midwestern, Eastern, and Southern regions which will allow transporters to mo,)e propane more freely with less road restrictions throughout the most affected regions. Last week, the U.S. Department of Energy reported that cold weather led to record-high natural gas storage withdrawals, as well as propane. Ef- forts are underway with the U.S. De- partment of Energy to acknowledge that emergency conditions could be forming, as consumers and busi- nesses in dozens of states are faced with higher electricity and gas costs due to persistent cold weather. The NPGA is working with offi- cials within the pipeline, rail, and truck transport industries and asking for propane shipments to be priori- tized within their industry. SHARP I(;. I(1! ,RadioShack INDE_R_.N_DENT Page 3